July 29, 2008

My Brother’s Words

Filed under: Heartache — Susan Stevenson @ 8:45 pm

I spoke to my brother Mike tonight for quite some time. It was a very emotional conversation at times, and I could feel tears welling up in me throughout our conversation. I am so sorry for what he is facing right now, and I wish I could do something to make things better. It so hard to hear sadness and grief in a loved one’s voice.

As we were ending our phone call, he asked me for the link to my journal. I know that Lisa used to read my journal and keep up with what was going on here in Alaska, as she would email me from time to time. I gave him the link, and a few moments ago he left a comment on the entry I posted on July 15th - when I first asked for prayers for Lisa. Because he left a public comment to that entry, I don’t think he’d mind me sharing it here for all of you who have been praying for Lisa, Mike and their sons.

Sue… Enjoyed our talk at 11:11 tonight. You know what I mean. I don’t want to go to sleep tonight, because when I wake up, I’ll be taking my honey home to die. It hurts just to write it. She fought the good fight for 8 long years, and never gave in. It was, in fact, the doctor who gave in this time, telling us there is nothing more that he can do. Never once did she shy away from any treatments, as devastating and brutal they were. Cancer treatments are still so prehistoric.

The cancer has now spread from her breast to her liver, lungs, brain, bone, and adrenal gland, not to mention whatever other parts of her body that have not been CT scanned, MRIed, poked, or prodded. I’ve been with her at the hospital for the time that she’s spent here this time around, so when I get home, I’ll be sleeping in our bed for the first time, without her.

I remember as a kid, hearing the adults talk about what a “heartache” it was to lose a loved one. I now realize that the heartache is actually a tangible and very real sensation. My heart is actually breaking, and it literally hurts. Thankfully, St. Mary medical center is an awesome hospital, and had a social worker take care of the logistics involved in moving my Honey to our house, to live out her final days. They told me on Sunday that she has a “few weeks” left, but, by the looks of things, and her rapid deterioration, I’d be surprised if she’s still with us this time next week.

Three days ago she was sitting up, eating and laughing with her two nieces from Ocean City, who came up to see her. Now, she can’t eat, has had 2 seizures, and is completely without feeling down her entire right side of her body. The most devastating effect of the brain metastasis though, is that she can no longer communicate her thoughts, because one of the tumors is in her speech center. She can hear and understand, and can think complete thoughts, but can’t put into words what is on her mind. So very frustrating for both of us.

Tonight, the Hospital Clergy came and anointed her with oil, reading her her last rights. I cried like a baby. Its those moments that remind me that this is all too real, and not just a bad dream.I guess her strength, and putting on a good face through all that she’s been through, lulled me into a false sense of normalcy. Her latest condition is a real reality check.

To this point, as late as 5:00 tonight, she was able to drink from a straw, to take the meds in pill form, that weren’t flowing through her chest port(which she’s had to live with for the past 8 years). Now, even that simple ability is gone…No response to the straw being laid against her lips; the same lips that gave tender kisses last week.

Well, its 12:20 AM here, and the big move is tomorrow. Katie and Maggie, our two dogs, haven’t seen “Mommy” in over two weeks. I’m sure there’s going to be lots of licking going on. Katie, our Yorkie, found Lisa’s cancer 8 years ago, sniffing incessantly at her underarm, until she forced Lisa to take a look at the area that Katie found so interesting. That’s when she found the lump.

Katie was also there with Lisa, every second of every day that she was bedridden, after the first round of Adriomycen and Cytoxen, the 2 chemo agents were administered…Chemo agents that are so caustic that the nurses wear two sets of gloves, for fear of getting chemical burns on their skin, from mere contact…so primitive. It literally causes the patient’s eyes to cross, when first administered, like something out of nazi Germany prison camp “medical tests”…There’s got to be a better way. Well, I’ve rambled long enough. Sue, I’ll be looking for that Dove tomorrow, I’m going to need him, Love Brother Mike

My heart is breaking for my brother. I am so sad that Lisa is leaving us. I am so sad that he has to say goodbye to the love of his life. I am so sad that my nephews are losing their mother. It’s just not fair that such a vibrant and young life has been cut short!

11:11 and The Dove:
When Mike mentions 11:11, it’s a reference to the fact that since our mother passed away, and always when I’m missing her the most, I’ll glance at the clock and it will be 11:11 or 1:11. I know it sounds silly, but it happens to me at the strangest times - and always when I’m silently talking to our mother, or wishing I could talk to her.  I mentioned this 11:11 thing to Mike tonight. It’s the first time I ever told him about it.  That’s when he told me about the dove.  It seems that Mike has the same ‘manifestation’ when he’s feeling our dad around him - but in his case, it’s a dove.  Spirits? Angels? Perhaps it’s God’s way of providing us comfort? I don’t know why it occurs, but I do know that seeing those numbers brings comfort to my heart.  Likewise the dove, to Mike.

9 Comments »

  1. Tears still streaming down…..I am here Susan. I remember the 11:11 you mentioned it to me at lunch. I will keep him and his family in our prayers.
    Stay strong too…okay? I know this is hard for everyone involved. Thoughts and prayers and love going your way from my family to yours!

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    Comment by Abby C. — July 29, 2008 @ 8:58 pm

  2. It is wonderful the way you and your brother are able to talk about this. And it is wonderful how God reaches out to us with tangible clues that we are not alone in this.

    You are in my prayers.

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    Comment by Sarah — July 30, 2008 @ 3:59 am

  3. Susan and Mike,
    My prayers are with you both. Having lost my mother to the same vile disease process I know a little of what you are feeling. The fact that Lisa has stayed here on earth as long as she has is a tribute to the love you all share. Love has kept her alive much longer than medicine ever could. The only comfort I can offer is that love never dies. It will always be with you even when the Lisa’s body has been released from the torment. It is my prayer for you that when Lisa is released it is as peaceful and beautiful as my mom’s passing. She left us with a beautiful smile on her face. It was if I could see Heaven through her eyes. May God comfort you. May the love you share and the prayers of your friends console you. I wish you peace.

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    Comment by Charlene — July 30, 2008 @ 4:07 am

  4. Oh My, I’m crying my eyes out reading his precious words of his wife. Mike, Lisa and their boys and Susan and your family are all in our prayers. Prayers that God will give you peace. Bless all of you.
    Liz

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    Comment by Liz McCollough — July 30, 2008 @ 12:08 pm

  5. Susan Just want to say Thank you for sharing it for all of us as your readers about your SIL
    I for one Really what you to keep every one informed
    on everything that is happening Please let me know when God does take her home Again Our Prayer are with Mike and the boys Also with you and the rest of the Family

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    Comment by John & Shirley Strauser — July 30, 2008 @ 4:24 pm

  6. Susan, I am so sorry, and your bro is in my prayers.

    Virtual hugs to you.

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    Comment by Nicole — July 30, 2008 @ 6:57 pm

  7. You have a very special family Susan. The love you all have for eachother is tremendous. Thank you for sharing this with us. The tears are streaming down my cheeks as I read your brothers words. I can’t even imagine the pain he feels having to ‘let go’ of his wife. You all are in my thoughts and prayers.

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    Comment by Lynn in MN — July 31, 2008 @ 3:38 am

  8. Im speechless…peace to you and yours susan…

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    Comment by KingFisher907 — August 5, 2008 @ 7:04 am

  9. Susan, I’m so so sorry. May God grant all of you His perfect Peace.

    [Reply]

    Comment by Another Susan — August 7, 2008 @ 9:52 pm

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